Hello, I decided to publish my notes in preparation for a presentation to those who are caring for someone who is ill, with Lyme disease, cancer, or any life-altering or life threatening illness.   The presentation will occur tonight, November the 5th at 6:30 at Bacchus Hospital in Norwich, Connecticut under the auspice of LymeLink.  I hope you will find it helpful and give you the support you need and deserve as you care for your loved one.  Since these are shorthand notes, if you have questions or want further elaboration, please blog or write!

  • How do we really take care of ourselves, what does this really mean?

A.  Physical care for the caretaker

  • A day in the (ideal) life
  • Sleep – six to eight hours per day; create a sleep sanctuary, low electric magnetic frequency in room, no light, shades to keep out light, replace light emitting electronics, regular bedtime, natural bedding and covers, animals in the bed or room?, earplugs, (for you or partner, sleep apnea?)eye covers, cotton pajamas or no clothing, no TV in bedroom, no drinks after 6, dinner as early as possible, light dinner, heavier meal at lunch, warm shower or Epsom salt bath before bedtime, soothing CD to assist with relaxation, herbal tea to promote relaxation – not too late, melatonin, valarian, hops, liquorish, combination teas for sleeping, routine, calming ritual, foot bath/soak (Epsom salt), sit back on neck or back massager in chair
  • Awakening – natural or alarmed? if alarmed, can it be soft, gradual? Or a combination of increasing natural light with carefully chosen music, hot-cold shower, glove scrubber, gentle, pure soap to reduce allergen challenge,  pure shampoos, other personal products, stretch neck in shower with hot water on neck, left and right, then forward (Yoga stretch), focus on stress and worry flowing down your body and down the drain – takes no additional time,
  • Dry brushing with a natural bristle brush all over your body, all in the direction of your heart
  • Neti pot – nasal lavage – 2 times per day to prevent colds, flu, sinus infections, nose bleeds, ear infections, etc.
  • Frequent hand washing with warm water and soap (no need for anti-bacterial agents, can create rebound)
  • Dental health critical – electric tooth brush preferred; regular dental appointments and cleanings
  • Regular health check-ups
  • Weekly or bi-weekly massage, Energy healing
  • Daily moderate exercise at a regular time (15-20 minutes a day, at least three times per week); mix and match
  1. Yoga – physical, emotional, spiritual practice – all encompassing life style
  2. Walking – can be gently aerobic, easy on joints, can use iPod with uplifting music, mood elevating; running if conditioned, though this is potentially more dangerous
  3. Biking (spinning classes)
  4. Pilates – combination of Yoga and western type exercising – but be careful for pulling muscles
  5. Swimming – excellent all over exercise; aqua classes are gently aerobic and strengthening as well as social
  6. Jacuzzi, hot tub – toxin release
  7. Sauna – toxin release
  8. Steam room – toxin release – all are stress reducers
  • Diet
  1. Andrew Weil’s anti-inflammatory diet
  2. Blood Type Diet
  3. Drink ½ your body weight in ounces (if you weigh 120 lbs, drink 60 oz per day) – spring or filtered water
  4. How much did you weight at age 20-25?  Was that your ideal weight?  Gradual restitution of body balance fosters the body’s self-healing
  5. Focus on fresh, organic vegetables and some fruits – nurturing for the body, and detoxifying
  6. Garlic, garlic, garlic
  7. Focus on whole foods (foods that your grandmother would have recognized as food) – do you know what processed food is?  In my lifetime:  processed foods, genetically modified, chemicalized, denatured, dyed, bleached, enriched, stripped, hormone-fed, artificial fertilizers, artificial ingredients with names you can’t pronounce.  Read the labels, keep it simple and natural.  Introduce more raw foods into your diet – vita-mix and juicing; if our body does not “recognize” food substitutes, it turns to fat and cellulite (pollution)
  8. Do not cook with aluminum pans; rather use cast iron or enamel covered pans
  9. Use some Himalayan or Celtic seas salt:  provides micro-nutrients – composition is compatible with our body composition
  10. Some animal and fish protein – organic and free range – very important.  Have less but of better quality – same money
  11. Substitute natural sweets for white, cane, processed sugar; eliminate foods containing xxx corn sweetener xxx – molasses, local honey to reduce allergies, fruit, naturally dried fruit, 85% cacao chocolate
  12. Moderate caffeine usage (excessive caffeine restricts blood flow to the brain, lowers cognitive function and can exacerbate emotional and mental health problems.)
  13. Introduce green tea to promote focus, and enhance anti-oxidant function
  14. Greens in powdered for capsule form helpful in detoxing
  15. Moderate alcohol consumption of red wine with meals
  16. Celebrate with each meal!  Candles at the dinner table, pleasant table talk, social time, or if alone, celebrate with yourself.

C.  Mental, Psychological, Emotional Care for the Caretaker

  • The Dark Side:
  1. My state of happiness depends on you; if you are well, then I will be OK
  2. I love you
  3. You matter more than me
  4. I am unworthy of care and love
  5. I am a function of giving
  6. I do not honor my individual self
  7. I am here for you
  8. I am a machine; I can give unconditionally without regard to my own resources
  9. I can do anything out of Love for you regardless of my own needs
  10. I have no needs, it’s all about you
  11. You first
  12. Me last
  13. I deny my exhaustion, pain, fear, need
  14. I insist I can do this
  15. I have no time for caring for myself
  16. I am too busy, I have too much to do
  17. Doing is more important than being
  18. Love is a one way street, for now
  19. My time will come, but I can’t think about that now
  20. I numb myself in order to keep on going
  21. I am helpless to heal you
  22. I cannot control your illness, so I feel out of control
  23. I want to fix you so you will feel better, then I will feel better
  24. I am overwhelmed
  25. I find myself compulsively engaging in pleasurable but dangerous behavior
  26. I get irritable and tired, but I must ignore it
  27. I feel like I am being used and victimized
  28. No one is taking care of me and I resent it
  29. I am sacrificing myself and no one even notices it
  30. I don’t feel appreciated
  31. I resent that others are not helping out
  32. Why am I always the one that others rely upon?
  33. Why do I have to do it all?
  34. I am angry, but feel guilty about it
  35. I shouldn’t be feeling what I am feeling
  36. I love you, but now you are becoming a burden
  37. When will it be over?
  38. I want out
  39. Guilt, guilt, guilt
  40. I hate you
  41. I hate myself for hating you
  42. I should be a better person
  43. I deserve punishment for being so mean, irritable and hateful
  44. I don’t feel well
  45. I am tired
  46. I have pain and misery
  47. I feel isolated and alone
  48. I can’t tell anyone about these dark thoughts and feelings
  49. If I did they would see through me
  50. I would be rejected for the selfish person I am
  51. I feel like giving up
  52. Stop being a baby
  53. Buck up
  54. Get over yourself
  55. I am hungry
  56. I am tired
  57. I want to disappear
  • The Light Side
  1. I love myself
  2. I love you
  3. I deserve time for myself every day
  4. I nurture myself for me
  5. I nurture myself so that I can share my love and care for you
  6. I consciously work at balance in my life
  7. I tune into my feelings and my body
  8. I identify compulsive behaviors and begin a recovery program
  9. I am aware of what defenses I use, and use them consciously as I need them, not automatically
  10. I identify and express my feelings in a healthy, assertive manner
  11. I avoid extreme and all or nothing thinking
  12. I challenge rigid thinking and seek to expand my consciousness
  13. I key into my body to check for somatic feelings so I can know what I am feeling
  14. I recognize boundaries and maintain boundaries with others
  15. I stop trying to control and fix others. I give less advise and fewer explanations
  16. I treasure myself
  17. I eat well, I exercise and relax every day
  18. I honor the different parts of me: wife, husband, daughter, son, mother, father, aunt, uncle, colleague, student, friend, worker, chef, housewife
  19. I honor the physical, mental, psychological and spiritual aspects of myself
  20. I remember that I am larger than any one moment
  21. I swim, walk, meditate, dance, pray
  22. I get massages, energy work, other healing on a regular basis
  23. I watch funny movies
  24. I nurture my creativity
  25. I remember what play is; I play
  26. I learn to trust myself
  27. I love you
  28. I care for you
  29. My cup floweth over and I joyfully share what I have with you
  30. I say No so I can say yes
  31. I talk to you (as appropriate) about my feelings and needs
  32. I honor your strength and gifts and ask for your help in the ways that you can give
  33. In so doing, that strengthens you
  34. I confront you if you become abusive or irritable with me
  35. I offer “in your face compassion” if that is what is needed
  36. I protect myself from abusive and destructive relationships.
  37. I focus on what people do, not what they say:  reality
  38. Therapy helps at an impasse

D.  Spiritual Care for the Caretaker

  1. I express gratitude for the gifts of life
  2. I practice surrender to a higher power
  3. I pray (talk to Spirit) and meditate (I listen to Spirit) daily – start out with just 5 minutes—up to 30 minutes
  4. I walk the earth and feel connection with the force of nature, and accept solace from that connection
  5. I practice living in the present, being here now
  6. I practice compassion and forgiveness for myself and others
  7. I open myself to intimacy and tenderness in my relationships
  8. I practice the art of “seeing” the beauty in nature, art, music
  9. I remember that this, too, will pass
  10. I remember that I, and we are part of the whole
  11. I surrender to Spirit and ask for help
  12. I remember that I am not alone

Namaste,

Cynthia

One Response to “First Aid for the Caregiver”
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