Hi,
I have received this information and want to pass it along to you for consideration. I urge anyone who has been affected by Lyme disease to sign this important petition:
“Please sign petition and send to people you know from Connecticut.
Subject: Help us request effective treatment for Lyme Disease
Those of us who have been touched by Lyme Disease, please take action by signing the petition. If you live in CT, please also copy it and get signatures in your area, then send it in by May 31 to Time for Lyme 30 Myano Lane Ste. 20 Stamford, CT 06902 The IDSA has refused to consider new research findings and reconsider findings that it ignored when it generated its treatment protocol for Lyme Disease in 2006. The members of this group continue to:
- Require positive test results from inadequate tests before a physician can diagnose Lyme Disease – even though over 40% of patients never generate positive results from these tests.
- Refuse to allow treatment for Lyme Disease beyond the 30-day dose of antibiotics that is ineffective against entrenched and chronic Lyme Disease.
- Refuse to acknowledge that Lyme Disease can become entrenched or chronic.
The scariest thing about this policy is that insurance companies are now refusing coverage for LD patients who do not present the positive test results or who have entrenched and chronic LD.
I would probably be dead now if I had listened to the doctors that told me my LD was cured – four times. Since I pursued treatment on my own, and without insurance coverage, I was able to lick the disease – but now the treatment I received is no longer effective for most people. Please, if you join no other cause, take the time to sign the petition and send this to everyone you can think of who lives in CT. Thanks, Al Burchsted
LYMEPOLICYWONK: IDSA PETITION –CT RESIDENTS URGED TO SIGN, DISTRIBUTE AND DELIVER!
06 May, 2010 Font size:Connecticut residents are urged to sign the petition to hold the IDSA legally accountable for violating the antitrust Settlement Agreement with the CT AG. Patients in the Lyme community are alarmed by the IDSA’s flagrant violation of the antitrust Settlement Agreement. Those in Connecticut are urged to sign the petition (link below in full story) electronically and to download a print version of the petition and take it door-to-door, at shopping centers, post offices and other public venues to gather signatures. We need to make our voices heard and we need to make them heard now. Paper petitions may be downloaded from the link below this blog post and should be mailed back no later than May 31st to Time for Lyme, 30 Myano Lane, Ste. 20, Stamford, CT 06902. If you are a Connecticut resident or you know anyone in Connecticut, please get this petition distributed and signed. The health and well-being of Lyme patients depends on it!
CONNECTICUT RESIDENTS ONLY!
PETITION FOR ACCESS TO EFFECTIVE MEDICAL CARE FOR PATIENTS!
Treatment guidelines now determine your medical treatment options. Patients need guidelines that are developed without commercial interests or industry bias. Sign this petition to urge Connecticut Attorney General Richard Blumenthal to hold medical societies accountable for their guidelines by continuing his historic fight against the vested interests of the Infectious Diseases Society of America (IDSA). All patients need access to effective medical care. If you are a Connecticut resident, click here to sign the petition or to download a paper petition for distribution. Let your voice be heard!
You can follow additional comments on Lyme policy at www.lymepolicywonk.org. You can contact Lorraine Johnson, JD, MBA at lbjohnson@lymedisease.org.
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Albert Burchsted
Retired Field Biologist
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“The purpose of an Education is to replace an empty mind with an open mind.”
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Chinese Proverb”